Well-informed 2patients and carers have a key role to play in the implementation of patient-centred prevention, treatment and care. Patient groups have a crucial role to play in supporting patients making their own choices, and are often forgotten as key stakeholders in society and healthcare. Patients need to sit at the table when health policy decisions are being made on their behalf. In science, they have unique knowledge and experience which can improve research.
This open-access website Patvocates.net (PATient adVOCATES), run by patient advocates, aims to provide a platform of collaborative knowledge about patient empowerment. It provides an open-access Wiki with information and resources on the following topics:
- Patient Support Wiki: The daily support work that patient groups deliver to patient
- Patient Advocacy Wiki: Patient empowerement through a strong patients’ voice
- Patients in Research Wiki: The patients’ contribution to collaborative clinical research