Patient Advocacy

Patient Advocacy in Health Policy, and Capacity Building The terms Patient Advocate and Patient Advocacy have a broad range of usage and may be applied to various subcategories of individual advocates and organizations providing various levels of advocacy. The term “Patient Advocacy” has a very broad range of usage that…

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Patient involvement in Research: Key EU projects

European Patients Academy on Therapeutic Innovation (EUPATI) The IMI-funded ‘European Patients Academy on Therapeutic Innovation’ aims to educate patient advocates and lay public about medicines R&D processes. The Innovative Medicines Initiative (IMI, http://imi.europa.eu), a public private partnership between the European Commission and EFPIA, will fund a patient-led consortium to develop…

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Patient support groups

Patient support groups are organizations, usually non-profit, that focus on supporting patients with specific diseases as well as their relatives. These organisations offer individual support services to patients, e.g. providing disease information and emotional support, addressing psychosocial or financial issues, providing the context when patients return from a doctor’s appointment, or just facilitating the sharing of experience.

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Potential roles of patient advocates

Some ideas of the roles that patient advocates could play in the medicines development process include: Setting priorities and cross-cutting issues Contributing to early horizon scanning, target product profile definition, intended research outcomes Ensuring that patients’ needs are considered within the research process Facilitating relationships between key stakeholders in medicines…

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