Patvocates

Welcome to the Patvocates Network!

Patient empowerment means that to be or become healthy, people must bring about changes in the environment that influences their health and well-being. Well informed patients and carers have a key role to play in the implementation of patient-centred prevention, treatment and care. Patient groups have a crucial role to play in supporting patients making their own choices, and are often forgotten as key stakeholders in society and healthcare. Patients need to sit at the table when health policy decisions are being made on their behalf. In science, they have unique knowledge and experience which can improve research.

This open-access website Patvocates.net (PATient adVOCATES), run by patient advocates, aims to provide a platform of collaborative knowledge about patient empowerment.

It provides an open-access Wiki where the community can contribute and share information on the following topics:

Patient Support: The daily support work that patient groups deliver to patient
Patient Advocacy: The patients' voice at the policy table
Patients in Research: The patients' contribution to collaborative clinical research

See the Wikis in the main menu on the left side.

News from Patient Advocacy

The 6th European Conference on Rare Diseases and Orphan Products, 23-25 May 2012

The 6th European Conference on Rare Diseases and Orphan Products (ECRD 2012) will be held on 23 – 25 May 2012 at the MCE Conference Centre in Brussels, Belgium. It is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders (patients’ representatives, academics, health care professionals, industry and policy makers). The conference provides the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives. It covers research, development of new treatments, health care, social care, information, public health and support at European, national and regional levels. Visit the official ECRD 2012 website.

IMI-funded 'European Patients Academy on Therapeutic Innovation' aims to educate patient advocates and lay public about therapeutic innovation

Last Updated on Thursday, 29 March 2012 22:50

eupati-200px The Innovative Medicines Initiative (IMI), a public private partnership between the European Commission and EFPIA, will fund a patient-led consortium to develop the 'European Patients' Academy on Therapeutic Innovation' (EUPATI). From 2012, the academy will educate patient representatives and the lay public on personalised and predictive medicine, design and conduct of clinical trials, drug safety and risk/benefit assessment, pharmaco-economics as well as patient involvement in drug development. EUPATI will provide educational material in seven European languages targeting eleven European countries. See the Patients' Academy website for more information.

No comments