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This open-access website Patvocates.net (PATient adVOCATES), run by patient advocates, aims to provide a platform of collaborative knowledge about patient empowerment.
It provides an open-access Wiki where the community can contribute and share information on the following topics:
- Patient Support: The daily support work that patient groups deliver to patient
- Patient Advocacy: The patients' voice at the policy table
- Patients in Research: The patients' contribution to collaborative clinical research
See the Wikis in the main menu on the left side.
News from Patient Advocacy
The 6th European Conference on Rare Diseases and Orphan Products (ECRD 2012) will be held on 23 – 25 May 2012 at the MCE Conference Centre in Brussels, Belgium. It is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders (patients’ representatives, academics, health care professionals, industry and policy makers). The conference provides the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives. It covers research, development of new treatments, health care, social care, information, public health and support at European, national and regional levels. Visit the official ECRD 2012 website.
IMI-funded 'European Patients Academy on Therapeutic Innovation' aims to educate patient advocates and lay public about therapeutic innovation
Last Updated on Thursday, 29 March 2012 22:50
The Innovative Medicines Initiative (IMI), a public private partnership between the European Commission and EFPIA, will fund a patient-led consortium to develop the 'European Patients' Academy on Therapeutic Innovation' (EUPATI). From 2012, the academy will educate patient representatives and the lay public on personalised and predictive medicine, design and conduct of clinical trials, drug safety and risk/benefit assessment, pharmaco-economics as well as patient involvement in drug development. EUPATI will provide educational material in seven European languages targeting eleven European countries. See the Patients' Academy website for more information.