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Welcome to the Patvocates Network!

Well-informed patients and carers have a key role to play in the implementation of patient-centred prevention, treatment and care. Patient groups have a crucial role to play in supporting patients making their own choices, and are often forgotten as key stakeholders in society and healthcare. Patients need to sit at the table when health policy decisions are being made on their behalf. In science, they have unique knowledge and experience which can improve research.

The Patvocates Network is both a patient-driven think tank and patient-focused consultancy in the triangle of patient advocacy, health policy and social media, run by activists with decades of experience in patient advocacy.

Latest blog posts

Why emotions matter

By Tamás Bereczky | May 3, 2017

Our work in patient advocacy comes from a human rights-based perspective. The right to health is a fundamental human right[1], and all individuals are entitled to the highest attainable quality of health regardless of their legal or health status or any other characteristics. We also believe and argue throughout our body of…

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Don’t know how to do it? Here’s the practical roadmap on patient involvement in research and development

By Jan Geissler | March 27, 2017

The development of new therapies is a highly regulated, costly, long and complex process. In an era of growing demand, pressure on healthcare budgets, and emphasis on patient-centricity, quality and sustainability of healthcare, it is critical to take patients’ needs into account at all stages of research – from research…

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Latest updated pages

Privacy Policy

By admin | May 24, 2018

We are pleased that you have called our website Patvocates. In the context of our privacy policy, we would like to provide you with an overview of the technical data collected, which in a broader sense may have personal relevance and the direct personal data that we receive from you…

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Cookie Policy

By admin | May 24, 2018

This site uses cookies – small text files that are placed on your machine to help the site provide a better user experience. In general, cookies are used to retain user preferences, store information for things like shopping carts, and provide anonymised tracking data to third party applications like Google…

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Jan Geissler

By Jan Geissler | March 16, 2017

Research Patient Advocate and Social Media Expert Founder and Managing Director, Patvocates GmbH, Germany Director, European Patients’ Academy on Therapeutic Innovation (EUPATI) Co-Founder, CML Advocates Network / Vice President Leukemia Patient Advocates Foundation, Switzerland Chair, Leukaemie-Online / LeukaNET e.V., Germany Jan Geissler is founder and managing director of Patvocates, a…

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