MISSION AND VISION

PATIENT ENGAGEMENT IS IN OUR DNA

At Patvocates, patient-driven passion brought us to the forefront of patient engagement. Our journey involves not just championing change but actively shaping it, making a difference where it truly matters.

Created and led by patients, carers and patient advocates, we embody top-tier methods, frameworks, tools and processes of patient engagement at our core, grasping patient community challenges and patients’ unmet needs firsthand and helping everyone to deliver on those.  

Patient engagement is in our DNA. We are committed to authentic and sustainable patient engagement. We support all healthcare stakeholders to drive meaningful change in the healthcare services, the patient community and the society.

“PATIENTS AND CARERS NEED TO BE EQUAL PARTNERS IN HEALTHCARE RESEARCH, HEALTHCARE DELIVERY AND PUBLIC POLICY. THEIR DEEP INSIGHTS INTO UNMET PATIENTS’ neEDS AND THEIR INVOLVEMENT AS CO-CREATORS OF RESEARCH AND CARE GENERATES MEASURABLE VALUE FOR BOTH THE PATIENT COMMUNITY AND HEALTHCARE STAKEHOLDERS.”

Jan Geissler, CEO and founder, PATVOCATES

“IF YOU WANT TO GO QUICKLY, GO ALONE. IF YOU WANT TO GO FAR, GO TOGETHER.”

David Haerry, PARTNER PATVOCATES

“I am passionate about empowering patient communities so that healthcare systems, pharmaceutical companies and academic research base their decisions on true unmet needs and robust evidence.”

Ananda Plate, EXECUTIVE DIRECTOR, HEAD OF INDUSTRY SERVICES, PATVOCATES

“PATIENTS AND CAREGIVERS ARE THE KEY TO UNDERSTANDING ALL ASPECTS OF THEIR DISEASE. THERE IS SO MUCH ALL STAKEHOLDERS CAN LEARN AND BENEFIT FROM BY LISTENING TO THEM.”

Alba Ubide, HEAD OF NGO SERVICES, PATVOCATES

THE PATVOCATES TEAM

WHO WE ARE
AND WHAT WE DO

At Patvocates, we are experts in patient engagement, seamlessly translating intent, methods, frameworks, and tools into impactful practice. Our extensive experience extends beyond concepts, having actively participated in multi-stakeholder initiatives, collaboration projects, ethics committees, research committees and NGOs for some decades. As initiators and leaders, we have spearheaded various patient engagement initiatives across the globe, spanning research and development, health policy, access and patient advocacy.

We prioritize tangible outcomes for patients and carers, turning passion and words into concrete, impactful initiatives. We deliver our services to patient organisations, non-governmental organisations, academic institutes, research organisations, funding bodies, medical associations and healthcare companies. We offer strategic consultancy, project management, training, mapping, event coordination and communication support. We run secretariats of organisations and programmes, we plan and implement long-term initiatives, campaigns and events, we create toolkits and organise trainings.

1


STRATEGIC CONSULTANCY

2


SUMMITS, WORKSHOPS & MODERATON

3


TRAINING & CAPACITY BUILDING

4


SECRETARIATS & NETWORKS

5


EVIDENCE GENERATION

ACHIEVEMENTS

WHAT WE ARE PROUD OF

Empowering non-profits: Our track record as an accelerator and incubator for non-profit organisations speaks for itself. In 2023 alone, our NGO Services Team spearheaded over 40 projects of varying scale and duration, aiding numerous organizations in achieving their goals.

Successful fundraising: With our support and guidance, our NGO clients have secured the necessary funds for their initiatives and developed lasting stakeholder partnerships, demonstrating the effectiveness of our strategies.

Excellence in patient engagement: In 2023, we successfully executed over 40 projects focused on patient engagement for healthcare companies, contributing to improved healthcare outcomes and enhanced patient experiences.

Patient-centric summits: We’ve orchestrated multiple patient summits for both industry and NGO projects, attracting hundreds of participants both in-person and online across various European locations.

Growing capacity and capabilities: Our commitment to enhancing the capacity of patient communities and healthcare staff is evident through our ongoing training programmes for patient organisations and healthcare companies, e.g. on patient engagement, patient advocacy, clinical research and evidence generation.

Community engagement across indications: Our reach extends across a wide spectrum of disease areas, including oncology, haematology, respiratory, metabolic and neurological diseases, many of those classified as rare and immunocompromised. We’ve engaged with patient communities from more than 30 disease areas.

KEY SERVICES

FOR HEALTHCARE
COMPANIES

  • Strategic consultancy on patient engagement
  • Community mappings
  • Patient Advisory Boards and Patient Councils
  • Patient Ambassador Programmes
  • Patient advocacy summits
  • Tailored patient engagement trainings

FOR PATIENT ORGANISATIONS,
NGOS, AND NON-PROFITS

  • Strategic consultancy
  • Secretariat services
  • Lay language conference reports
  • Project management
  • Evidence generation
  • Patient summits and congresses
  • Awareness campaigns and communication
  • Educational material and capacity building programmes
  • Community Advisory Boards