The Patvocates Network is both a patient-driven think tank and patient-focused consultancy in the triangle of patient advocacy, health policy and social media.
The Patvocates Network is run by activists with decades of experience in patient advocacy. We provide valuable advice, insights, experiences and connections in supporting patient engagement strategy development, stakeholder identification, system readiness and project implementation in patient organisations and other stakeholders engaging with them - regulators, ethics committees, academic institutions and organisations and the pharmaceutical industry. We focus on strengthening patient advocates activities on multiple levels: supporting patients and peers, influencing health policy, and collaborating with stakeholders in research and development. > Read more about what we do
The Patvocates Network is registered in Germany and acting mainly on a European level.
The core team of the Patvocates Network:
Jan Geissler is founder and CEO of Patvocates, acting as advisor on patient advocacy, health policy and patient engagement in research & development. For the past 16 years, Jan has engaged in patient advocacy on the European and international level, based on his experience as both a cancer survivor, advocate and a patient expert. He has co-founded LeukaNET, the CML Advocates Network, the Leukemia Patient Advocates Foundation, the Workgroup of European Cancer patient Advocacy Networks (WECAN) as well as the European Cancer Patient Coalition. From 2011-2017, Jan has been the Director of EUPATI for the European Patients' Forum. He contributes to number of advisory boards, committees and expert groups of e.g. the European Commission, medical societies, journals, NGOs and the industry. Read more about Jan here.
Nicole works as Project Manager at Patvocates. She was raised in Argentina, Spain and Germany and holds a Master in International Cultural and Business Studies. Nicole has a pharma and business background and worked for a generics pharmaceutical company prior to providing project management and medical translation services to pharmaceutical companies and patient advocacy organisations. Recent projects in the area of patient advocacy include work for the European Patients' Academy (EUPATI), CML Advocates Network, LeukaNET, Myeloma Patients Europe, Patient Power, MDS Alliance, Hematology ePAG Project Management Office and the Hematology Community Advisory Board (Hem-CAB). Read more about Nicole here.
David U. Haerry
David Haerry has been a treatment writer and reporting to patients and lay people from scientific conferences since 1996. He has a long standing experience in collaborating with industry and academic researchers on drug development, planning pivotal and academic studies at global level and taking the patient voice to cohort studies and patient registries. He is collaborating intensively with the European Medicines Agency EMA since 2005 and with Swissmedic since 2014. From 2014 to 2016, he was a member of the working group revising the CIOMS International Ethical Guidelines for Health-related Research involving Humans.
Tamás currently works as the communications advisor of the European AIDS Treatment Group (www.eatg.org), the largest European network of individuals living with HIV. HIV positive since 2003, he served as a member of the board of directors of the EATG for almost 4 years, and also served the co-chair of the European Commission’s Civil Society Forum on HIV/AIDS between 2013 and 2015. Tamás speaks German, English and Hungarian. He is father to an adult daughter and lives with his partner in Budapest, Hungary.