The Patvocates Network is both a patient-driven think tank and patient-focused consultancy in the triangle of patient advocacy, health policy and medicines research & development.
The Patvocates Network is run by activists with decades of experience in patient advocacy. We provide valuable advice, insights, experiences and connections in supporting patient engagement strategy development, stakeholder identification, system readiness and project implementation in patient organisations and other stakeholders engaging with them - regulators, ethics committees, academic institutions and organisations and the pharmaceutical industry. We focus on strengthening patient advocates activities on multiple levels: supporting patients and peers, influencing health policy, and collaborating with stakeholders in research and development. > Read more about what we do
The Patvocates Network is registered in Germany and acting mainly on a European level.
The core team of the Patvocates Network:
Jan Geissler is founder and CEO of Patvocates, acting as advisor on patient advocacy, health policy and medical research & development. For the past 17 years, Jan has been a patient advocate on the European and international level, based on his experience as a cancer survivor and patient expert. He has co-founded LeukaNET, the CML Advocates Network, the Leukemia Patient Advocates Foundation, WECAN as well as the ECPC. Jan has been the EUPATI Director for 6 years. He contributes in advisory boards, committees and expert groups of e.g. the European Commission, medical societies, journals, NGOs and industry.
David U. Haerry
David Haerry has been a treatment writer and reporting to patients and lay people from scientific conferences since 1996. He has a long standing experience in collaborating with industry and academic researchers on drug development, planning pivotal and academic studies at global level and taking the patient voice to cohort studies and patient registries. He is collaborating intensively with the European Medicines Agency EMA since 2005 and with Swissmedic since 2014. From 2014 to 2016, he was a member of the working group revising the CIOMS International Ethical Guidelines for Health-related Research involving Humans.
Tamás currently works as the communications advisor of the European AIDS Treatment Group (www.eatg.org), the largest European network of individuals living with HIV. HIV positive since 2003, he served as a member of the board of directors of the EATG for almost 4 years, and also served the co-chair of the European Commission’s Civil Society Forum on HIV/AIDS between 2013 and 2015.
Tamás speaks German, English and Hungarian. He is father to an adult daughter and lives with his partner in Berlin, Germany.
Team members of the Patvocates Network:
Alba works as Operations Manager at Patvocates, providing project management as well assistance to the CEO and core team of Patvocates. Alba graduated in Biomedical Sciences with a Master of Science in Molecular Biotechnology at the University of Barcelona. Before joining Patvocates, she has worked as a clinical research professional with a track record of success in managing clinical trial sites across a different range of therapeutic areas. Previously, Alba worked as Laboratory Manager at the University of Edinburgh, setting up and managing a newly developed Synthetic Biology Lab. She obtained an additional certification in Central Monitoring by the International Academy of Clinical Research as well as a certification in Project Management.
Nicole works as Project Manager at Patvocates. She was raised in Argentina, Spain and Germany and holds a Master in International Cultural and Business Studies. Nicole has a pharma and business background and worked for a generics pharmaceutical company prior to providing project management and medical translation services to pharmaceutical companies and patient advocacy organisations.
Recent projects in the area of patient advocacy include work for the European Patients' Academy (EUPATI), CML Advocates Network, LeukaNET, Myeloma Patients Europe, Patient Power, MDS Alliance, Hematology ePAG Project Management Office and the Hematology Community Advisory Board (Hem-CAB). Read more about Nicole here.
Networking and bringing the right people together has always been Michi's key motivation, organizing meetings and coordinating projects is her passion.
Michi holds a diploma in business studies and has been working in cancer patient advocacy since 2005. Michi has a strong business background, specifically in the areas of communication and marketing, organizational development and IT. From 1999 to 2005, she worked for the e-business sector of Bertelsmann.
Michi got involved in patient advocacy in 2001 on a voluntary basis and focused her professional life on it in 2005. She provided project management services to the patient organisations LeukaNET, European Cancer Patient Coalition, Sarcoma Patients EuroNet, Leukemia Patient Advocates Foundation, CML Advocates Network, Das Lebenshaus, Myeloma Patients Europe and others. Main activities include the development and implementation of patient summits, conferences, Community Advisory Board meetings, Annual General Meetings, and steering committee meetings.
Marie-Christine is our specialist for the optimization of informed consent for clinical studies. She graduated in Communication Sciences at Ludwig-Maximilians-University in Munich. Focusing on Health Communication, she wrote her Master Thesis about the Communication Behaviour of Cancer Patients.
After completing a traineeship at GSK and a correspondence course as Medical Representative at IHK, Marie-Christine started a scientific project on the improvement of informed consent in clinical trials, optimizing, patient-friendly informed consent documents based on internationally accepted guidelines. Her Informed Consent Forms are in use in different clinical studies today. She also graduated as Media Designer and is focusing on patient insights.
She implemented the German World CML Day campaign “Manchmal ein Kunststück”, worked as Communication Manager for EUPATI and supported several projects for CML Advocates Network and LeukaNET e.V. Read more about Marie-Christine here.
Randi is a clinical psychologist by education. She has worked for a few years in the public health care system and school system, then for a pharma company mainly on communication and education projects. Afterwards, as a freelance consultant in health care communications, she supported several patient organizations, followed by working for an academia-led biomedical venture in Copenhagen. Her skills include public relations, websites, and communication with patients. Randi is a breast cancer survivor and and engaged in the Danish Breast Cancer organisation for many years.