Patvocates is a consultancy, social enterprise and think tank on patient advocacy, health policy and patient engagement in medical research. Patvocates provides unique insights, experience and connections in patient advocacy through strategy development, facilitation of stakeholder interaction and excellence in project implementation. We provide strategic consultancy, hands-on training and platforms for interaction to patient advocacy organisations, authorities and the private sector. Our goal is to establish and develop effective engagement frameworks, policies, processes and projects for patient advocacy groups, authorities, healthcare institutions and the private sector.
Patvocates is run by a team of leading pan-European patient advocates with more than 50 years of experience in the field, with in-depth knowledge of pan-European healthcare systems, institutions, stakeholders, cultures and the pan-European patient community across different disease areas. Being a social enterprise, Patvocates donates parts of its revenue to educational non-profit initiatives. > Read more about what we do
The partners of the Patvocates Network:
Jan Geissler is founder and CEO of Patvocates, acting as advisor and consultant on patient advocacy, health policy and patient engagement medical research & development. For the past 18 years, Jan has been a patient advocate on the European and international level, based on his experience as a cancer advocate and patient expert. He has co-founded LeukaNET, the CML Advocates Network, the Leukemia Patient Advocates Foundation, the Acute Leukemia Advocates Network, WECAN as well as the ECPC. Jan has been the Director of EUPATI for 6 years. He contributes to advisory boards, committees and expert groups of e.g. the European Commission, medical societies, journals, NGOs and industry. Read more about Jan here.
David U. Haerry
David Haerry has been a treatment writer and reporting to patients and lay people from scientific conferences since 1996. He has a long standing experience in collaborating with industry and academic researchers on drug development, planning pivotal and academic studies at global level and taking the patient voice to cohort studies and patient registries. He is collaborating intensively with the European Medicines Agency EMA since 2005 and with Swissmedic since 2014. From 2014 to 2016, he was a member of the working group revising the CIOMS International Ethical Guidelines for Health-related Research involving Humans. Read more about David here
Tamás currently works as the communications advisor of the European AIDS Treatment Group (www.eatg.org), the largest European network of individuals living with HIV. HIV positive since 2003, he served as a member of the board of directors of the EATG for almost 4 years, and also served the co-chair of the European Commission’s Civil Society Forum on HIV/AIDS between 2013 and 2015.
Tamás speaks German, English and Hungarian. He is father to an adult daughter and lives with his partner in Berlin, Germany. Read more about Tamás here
Team members of the Patvocates Network:
Hamda works as a Senior Office Assistant at Patvocates, providing administrative support to the team and executive assistance to the CEO. Her expertise includes administrative and organizational assistance, communication and project management support to the teams.
Her previous roles in the project management offices at Allianz and Bossert Associates included supporting Executives and Board Members on international projects and assisting international teams.
Samantha Nier is working as a project manager at Patvocates and the Acute Leukemia Advocates Network. Before, Samantha has been working in the area of patient advocacy for a number of years. She has a science background with almost 12 years of experience in the pharma industry, working in various fields including Medical Affairs, Pharmacovigilance and Drug Safety and Clinical Development. In her last role as Patient Advocacy Lead for a pharmaceutical company, she focused on incorporating the patient perspective into the company’s projects. As one of her key project, she led CML Life, a patient support programme in Chronic Myeloid Leukemia which was co-created together with the CML patient community.
Samantha has a Master degree in Biology and Ecology and a medical diploma in Tropical Medicine and Parasitology. In addition, she has obtained certifications in Management of Biotech, Medtech and Pharma ventures, Medical Affairs and Journalism. Samantha speaks fluent French and English and is currently refreshing her knowledge of Italian, Spanish and sign language. She lives in Switzerland and teaches yoga, baby swimming and scuba diving in her free time.
Zack Pemberton-Whiteley is a non-practicing lawyer (BPTC LLM) specialising in developing and using evidence to drive advocacy change. He is working with Patvocates to help other patient groups to do the same.
He also works extensively on health policy campaigns and enabling access to treatment, particularly focusing on health technology appraisals (HTA) and improving patient involvement.
Outside of Patvocates, Zack works as Patient Advocacy Director at Leukaemia Care, a UK based blood cancer charity where he heads up their advocacy, campaigns, policy, healthcare professional education and patient support services. Zack is also Chair of the global Acute Leukemia Advocates Network (ALAN), Vice Chair of the Blood Cancer Alliance in the UK and a member of the CML Advocates Network Community Advisory Board (CAB) representing Western Europe.
Anne-Pierre joined the Patvocates team as expert on health technology assessment and patient access. Anne-Pierre brings 20+ years of experience with a wide range of healthcare stakeholders (charity, patient organisation, governmental agency, consultancy and pharmaceutical industry). Her skills and expertise in health communication, cancer prevention and market access, combined with her personal experience as a leukaemia survivor, give her a unique perspective on patient engagement, advocacy and equal access to adequate care. Read more about Anne-Pierre here.
Randi is a clinical psychologist by education. She has worked for a few years in the public health care system and school system, then for a pharma company mainly on communication and education projects. Afterwards, as a freelance consultant in health care communications, she supported several patient organizations, followed by working for an academia-led biomedical venture in Copenhagen. Her skills include public relations, websites, and communication with patients. Randi is a breast cancer survivor and and engaged in the Danish Breast Cancer organisation for many years.
Nicole works as Project Manager at Patvocates. She was raised in Argentina, Spain and Germany and holds a Master in International Cultural and Business Studies. Nicole has a pharma and business background and worked for a generics pharmaceutical company prior to providing project management and medical translation services to pharmaceutical companies and patient advocacy organisations.
Recent projects in the area of patient advocacy include work for the European Patients' Academy (EUPATI), CML Advocates Network, LeukaNET, Myeloma Patients Europe, Patient Power, MDS Alliance, Hematology ePAG Project Management Office and the Hematology Community Advisory Board (Hem-CAB). Read more about Nicole here.
Alba works as Operations Manager at Patvocates, providing project management as well assistance to the CEO and core team of Patvocates. Alba graduated in Biomedical Sciences with a Master of Science in Molecular Biotechnology at the University of Barcelona. Before joining Patvocates, she has worked as a clinical research professional with a track record of success in managing clinical trial sites across a different range of therapeutic areas. Previously, Alba worked as Laboratory Manager at the University of Edinburgh, setting up and managing a newly developed Synthetic Biology Lab. She obtained an additional certification in Central Monitoring by the International Academy of Clinical Research as well as a certification in Project Management.
Networking and bringing the right people together has always been Michi's key motivation, organizing meetings and coordinating projects is her passion.
Michi holds a diploma in business studies and has been working in cancer patient advocacy since 2005. Michi has a strong business background, specifically in the areas of communication and marketing, organizational development and IT. From 1999 to 2005, she worked for the e-business sector of Bertelsmann.
Michi got involved in patient advocacy in 2001 on a voluntary basis and focused her professional life on it in 2005. She provided project management services to the patient organisations LeukaNET, European Cancer Patient Coalition, Sarcoma Patients EuroNet, Leukemia Patient Advocates Foundation, CML Advocates Network, Das Lebenshaus, Myeloma Patients Europe and others. Main activities include the development and implementation of patient summits, conferences, Community Advisory Board meetings, Annual General Meetings, and steering committee meetings.
Marie-Christine is our specialist for the optimization of informed consent for clinical studies. She graduated in Communication Sciences at Ludwig-Maximilians-University in Munich. Focusing on Health Communication, she wrote her Master Thesis about the Communication Behaviour of Cancer Patients.
After completing a traineeship at GSK and a correspondence course as Medical Representative at IHK, Marie-Christine started a scientific project on the improvement of informed consent in clinical trials, optimizing, patient-friendly informed consent documents based on internationally accepted guidelines. Her Informed Consent Forms are in use in different clinical studies today. She also graduated as Media Designer and is focusing on patient insights.
She implemented the German World CML Day campaign “Manchmal ein Kunststück”, worked as Communication Manager for EUPATI and supported several projects for CML Advocates Network and LeukaNET e.V. Read more about Marie-Christine here.