Publications by Patvocates Team Members

2024

• Patient authorship of medical research publications: An evolution, revolution, and solution? Woolley K, Stones S, Stephens R, Bharadia T, Yamamoto B, Geissler J, Yang B, Oliver J, Boughey A, Elliott C, Dormer L, Walker J, Lobban D, in: Learned Publishing (2024). doi: 10.1002/leap.1607
• Physical exercise recommendations for patients with chronic myeloid leukemia based on individual preferences identified in a large international patient survey study of the East German Study Group for Hematology and Oncology (OSHO #97). Hollenbach L, Rogahn J, le Coutre P, Schulze S, Muegge LO, Geissler J, Gruen J, Junghanss C, Felser S in: Front. Oncol., 21 February 2024, Volume 14 – 2024. doi: 10.3389/fonc.2024.1345050
• Patients’ knowledge, preferences, and perspectives about data protection and data control: an exploratory survey. Lalova-Spinks T, Saesen, Silva M, Geissler J, ShakhnenkoIryna I, Camaradou JC, Huys I in: Frontiers in Pharmacology, 20 February 2024, Volume 14 – 2023. doi: 10.3389/fphar.2023.1280173
• Decreased physical activity and prolonged sitting time are associated with liver steatosis in people with HIV, Riebensahm C, Berzigotti A, Surial B, Haerry D, Günthard H F, Tarr Ph E, Furrer HJ, Rauch A, Wandeler G, Swiss HIV Cohort Study SHCS: JAIDS Journal of Acquired Immune Deficiency Syndromes 95(2): p 179-184, February 1, 2024; doi: 10.1097/QAI.0000000000003328
• Humanes Papillomavirus Impfung: Update 2023: Kiener L, Schwendener C, Wingeier B, Gallmann C, Etter G, Huber B, Bertisch B, Aebi-Popp K, Haerry D, Kind A, Frey Tirri B, Broglie M, Tarr Ph: Prim Hosp Care Allg Inn Med. 2024;24(02):37-42; doi: 10.4414/phc-d.2024.1335630678
• Humanes Papillomavirus: Update zu Erkrankungen und Prävention: Kiener L, Schwendener C, Wingeier B, Gallmann C, Etter G, Huber B, Bertisch B, Aebi-Popp K, Haerry D, Kind A, Frey Tirri B, Broglie M, Tarr Ph: Prim Hosp Care Allg Inn Med. 2024;24(01):14-18; doi: 10.4414/phc-d.2024.1324160658

2023

• Delivering Digital Health Solutions that Patients Need: A Call to Action. Veronica Popa, Jan Geissler, Rebecca Vermeulen, Elizabeth Priest, Katherine Capperella, Gözde Susuzlu, Sharon F. Terry, Nicholas Brooke in: Therapeutic Innovation & Regulatory Science, published: 11 December 2023 (2023). doi: 10.1007/s43441-023-00592-4
• Precision oncology medicines and the need for real world evidence acceptance in health technology assessment: Importance of patient involvement in sustainable healthcare. Jan Geissler, Lydia E. Makaroff, Bärbel Söhlke, Carsten Bokemeyer in: European Journal of Cancer, Volume 193, November 2023, 113323. doi: 10.1016/j.ejca.2023.113323
• A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community. Bonnie Addario; Violeta Astratinei; Louise Binder; Jan Geissler; Marcia K. Horn; Linda U. Krebs; Bryan Lewis; Kathy Oliver; Andrew Spiegel in: The Patient – Patient-Centered Outcomes Research for 2023-09. doi: 1007/s40271-023-00642-x
• Vom Patienten zum Akteur in der Nationalen Dekade gegen Krebs. Jan Geissler, Stefan Huber in: Forum, Springer Medizin Verlag GmbH (2023). doi: 10.1007/s12312-023-01227-3
• Adopting recommendations for implementing patient involvement in cancer research: a funder’s approach. Costa Alencar, A.B., Selig, W.K.D., Geissler, J. et al. . in: Res Involv Engagem (2023). doi: 10.1186/s40900-023-00410-z
• Understanding quality of life in patients with acute leukemia, a global survey. Pemberton-Whiteley, Nier, Geissler, Wintrich, Verhoeven, Christensen, Salek, Oliva, Ionova, Bradley, in: Patient Cent Res Rev. 2023;10:21-30. doi: 10.17294/2330-0698.1951
• Long-Term Trends in Hepatitis C Prevalence, Treatment Uptake, and Liver-Related Events in the Swiss HIV Cohort Study: Baumann L, Braun D L, Cavassini M, Stoeckle M, Bernasconi E, Schmid P, Calmy A, Haerry D, Béguelin Ch, Fux Ch A, Wandeler G, Surial B, Rauch A: , 2023; Liver International, 18 Oct 2023; doi: 10.1111/liv.15754
• Triggers of change in sexual behavior among people with HIV: The Swiss U=U statement and Covid-19 compared: Hamusonde K, Salazar Vizcaya L P, Bernasconi E, Calmy A, Darling K, Günthard H, Haerry D,  Kouyos R, Nicca D, Schmid P, Stoeckle M, Rauch A: J Infect Dis 2023 Feb 1;227 (3):407-411. doi: 10.1093/infdis/jiac459
• Adopting recommendations for implementing patient involvement in cancer research: A funder’s approach. Behan V, Costa Alencar A, Selig W, Geissler J, Bereczky T, Ubide A, Haerry D, Stephens R; Res Involv Engagem. 2023 Mar 1;9(1):6. doi: 10.1186/s40900-023-00410-z

2022

• Veränderungen durch die neue EU-Verordnung 536/2014 zu klinischen Prüfungen aus Patientensicht. Klingmann, Paul, Bereczky, Plate, Breithaupt-Grögler, Schindler, Geissler, in: Bundesgesundheitsbl (14 Dec 2022), DOI: 10.1007/s00103-022-03635-7
• Pan-Stakeholder Core Outcome Set (COS) Definition for Hematological Malignancies within the Framework of Harmony and Harmony PLUS Projects. Lang, Bereczky, Geissler et al, in: Blood (2022) 140 (Supplement 1): 5285–5287, DOI: 10.1182/blood-2022-157549
• European Groundshot—addressing Europe’s cancer research challenges: a Lancet Oncology Commission. Lawler, Davies, Oberst, Oliver (…) Geissler et al, in: Lancet Oncology Commission (2022), DOI: 10.1016/S1470-2045(22)00540-X
• An Approach to Solving the Complex Clinicogenomic Data Landscape in Precision Oncology: Learnings From the Design of WAYFIND-R, a Global Precision Oncology Registry. Le Tourneau, Perret, Hackshaw, Blay, Nabholz, Geissler, Do, von Meyenn, Dienstmann, in: JCO Precis Oncol (2022), DOI: 10.1200/PO.22.00019
• Patientenbedürfnisse müssen eine zentrale Rolle spielen. Interview mit Prof. Diana Lüftner und Jan Geissler über die Bedürfnisse der Patienten, deren Einbeziehung in wissenschaftliche Projekte, Fortschritte in der Digitalisierung und die Bedeutung von Informationen, in: FAZ Zukunft Gesundheitswesen, 16 Jun 2022
• Building a HARMONY Added Value Framework for Hematologic Malignancies: A Comparative Analysis of Existing Tools. Cerisoli, Ali, Bereczky, Bolaños, Bullinger, Dhanasiri, Gallagher, García Pérez, Geissler, Guillevic, Harrison, Naoum, Portulano, Rodríguez, Schulze-Rath, Gómez Sanz, Hernández Rivas, in: Value in Health (2022), DOI: 10.1016/j.jval.2022.04.1729
• Reaching beyond maximum grade: progress and future directions for modernising the assessment and reporting of adverse events in haematological malignancies. Thanarajasingam, Minasian, Bhatnagar, Cavalli, Angelo De Claro, Dueck, El-Galaly, Neil Everest, Geissler, Gisselbrecht, Gormley, Gribben, Horowitz, Ivy, Jacobson, Keating, Kluetz, Kwong, Little, Matasar, Mateos, McCullough, Miller, Mohty, Moreau, Morton, Nagai, Nar, Nastoupil, Robertson, Sidana, Smdby, Soneveld, Tzogani, von Leeuwe, Velikova, Vlla, Wingard, Seymour, Habermann, in: Lancet Hematology (2022), DOI: 10.1016/S2352-3026(22)00045-X
• Improving outcomes through patient-generated evidence – the next step in patient advocacy. Geissler, Huber (2022), in: The Lancet Haematology, doi 10.1016/S2352-3026(22)00131-4
• Delivering precision oncology to patients with cancer. Mateo, Steuten, Aftimos, André, Davies, Garralda, Geissler, Husereau, Martinez-Lopez, Normanno, S. Reis-Filho, Stefani, Thomas, Westphalen, Voest, in: Nature Medicine volume 28, pages 658–665 (2022), DOI: 10.1038/s41591-022-01717-2
• Das Potenzial digitaler Entscheidungshilfen und großer Datensätze für Patienten und Forschung. Geissler, Huber, in: Nationale Arena für digitale Medizin – Wandel. Werte. Wege. Leyck Dieken (Hrsg.), Medizinisch Wissenschaftliche Verlagsgesellschaft (2022), ISBN: 978-3-95466-667-6
• Sexuell übertragbare Infektionen: Epidemiologie und Management: Schoepf I C, Hunziker M, Surber J, Bertisch B, Hampel B, Meynard A, Brenner Cortazar M, Kulier R, Egli R, Grandinetti T, Etter G, Dietrich L, H, Capol S, Aebi Popp K, Müller S, J. Schmidt, A, Tarr Ph, co-author (David U. Haerry); Prim Hosp Care Allg Inn Med. 2022;22(10); doi: 10.4414/phc-d.2022.10556
• Affenpocken: Simon NR, Schöpf IC, Haerry D, Deml MJ, Müller S, Aebi-Popp K, Egli R, Kulier R, Meynard A, Schmidt AJ, Rowedder A, Béguelin C, Falch B, Etter G, Bertisch B, Braun DL, Nemeth J, Calmy A, Tarr P; Prim Hosp Care Allg Inn Med. 2022;22(10); doi: 10.4414/phc-d.2022.10529

2021

• Principles of Successful Patient Engagement in Cancer Research. Authored by the German Federal Ministry of Education and Research in the framework of the Trio Presidency of the European Council (Germany, Portugal and Slovenia) with over 130 contributors from 16 countries across Europe. Published in in September 2021
• “It’s easier when you know how…” A publications training course co-created by patient advocates and publication professionals. Woolley, Geissler, Bereczky, Bougheye, Pemberton-Whiteley Gegenyg, Lobban, in: Curr Med Res Opin 2021;27(Suppl 1):14., doi: 10.6084/m9.figshare.16768882.v1
• The European Code of Cancer Practice. Lawler, Oliver, Gijssels, Aapro, Abolina, Albreht, Erdem, Geissler, Jassem, Karjalain, Vecchia, Lievensk, Meunier, Morrissey, Naredim, Oberst, Poortmanso, Price, Selby et al, in: Journal of Cancer Policy (2021), doi: 10.1016/j.jcpo.2021.100282
• Recommendations on patient involvement for funding institutions. Geissler, Haerry, Bereczky, Alencar. Rising Tide Foundation and Patvocates (2021)
• Recommendations on patient involvement for applicants of collaborative research grants. Geissler, Haerry, Bereczky, Alencar. Rising Tide Foundation and Patvocates (2021)
• Recommendations for patient organizations and patient advocates on participation in collaborative research projects. Geissler, Haerry, Bereczky, Alencar. Rising Tide Foundation and Patvocates (2021)
• Gesundheitskompetenz und Patientenpartizipation in Deutschland und der EU. Geissler, Huber, in: Patienten und Fachgesellschaften: Zusätzliche Expertise fürs AMNOG. Interdisziplinäre Plattform zur Nutzenbewertung, Ausgabe 13 (Sept 2021), ISBN 2364-916X.
• Patientenbeteiligung als Investment für eine effizientere Forschung und Entwicklung neuer Arzneimittel. Geissler, Huber, in: PM QM 3/2021 by DGPharMed and German Quality Management Association e.V.
• Gemeinsam Forschen gegen Krebs. Geissler, in: Zukunft der Krebsmedizin 2021, Frankfurter Allgemeine Zeitung (23. Juni 2021).
• Patient Preferences for Multiple Myeloma Treatments: A Multinational Qualitative Study.
  Janssens R, Lang T, Vallejo A, Galinsky J, Plate A, Morgan K, Cabezudo E, Silvennoinen R, Coriu D, Badelita S, Irimia R, Anttonen M, Manninen RL, Schoefs E, Vandebroek M, Vanhellemont A, Delforge M, Stevens H, Simoens S, Huys I.
  in: Front Med (Lausanne). 2021 Jul 6;8:686165. doi: 10.3389/fmed.2021.686165, PMID: 34295912
• The Role of EUPATI CH in Promoting Patient Involvement in Clinical Research: A Multi-Stakeholder Research Project: Sessa C, Schmid C, Tolotti A, Magnin A, Haerry D, Bonetti L and Klingmann I (2021). Front. Med. 8:795659, Dec 2021 doi: 10.3389/fmed.2021.795659.
• Participation, retention and uptake in a multicentre pre-exposure prophylaxis cohort using online, smartphone-compatible data collection: F Hovaguimian, E Martin, M Reinacher, M Rasi, AJ Schmidt, E Bernasconi, E Boffi El Amari, DL Braun, A Calmy, K Darling, V Christinet, C Depmeier, C Hauser, S Läuchli, J Notter, M Stoeckle, B Surial, P Vernazza, P Bruggmann, P Tarr, D Haerry, R Bize, N Low, A Lehner, J Böni, RD Kouyos, JS Fehr, B Hampel: HIV Medicine, Vol 23, Issue 2, Oct 2021, doi: 10.1111/hiv.13175
• Recommendations on Screening Strategies for Cervical Cancer: HPV testing compared to cytology: Zwahlen M, Agoritsas Th, Aebi St, Auer R, Guetg R, Fracheboud J, Schwenkglenks M, Hurst-Majno S, Salathé M, Haerry D: ; Cancer Screening Committee, Krebsliga Schweiz, August 2021
• Bassetti C. L. A., Bochud M, Calandra Th, Frey U, Frisoni G B, Geissbühler A, Haerry D H U, Hurst S, Knuesel I, Naef R, Pauli-Magnus Ch, Scheidegger D, Selby K, Selter L, Tapernoux M, Vermij S, von Moos R, Windecker St, Wollscheid B: White Paper: Clinical Research, Swiss Academies Communications, Vol 16, No 3, 2021
• Der Anfang vom Ende der HIV/Aids-Pandemie – HIV-Prä-Expositions-Prophylaxe (PrEP) in der Schweiz: Weber M, Bernasconi E, Bize R, Boffi E, Böhni J, Braun D, Calmy A, Cavassini M, Christinet V, Depmeier C, Fehr J, Haerry D, Hauser Ch, Kouyos R, Lachmann F, Läuchli, Lehner A, Low N, Nicca D, Rasi M, Reinacher M, Schmidt AJ, Stoeckle M, Vernazza P, Hampel B: Swiss Medical Forum 2021, accepted manuscript
• Neues aus der HIV-Diagnostik: Hampel B, Bernasconi E, Boffi E, Böni J, Borso D, Calmy A, Cavassini M, Fehr J, Furrer Hj, Haerry D, Herold M., Kahlert Ch, Scheidegger C, Schmid P, Stoeckle M, Tarr Ph, Toutous Trellu L, Vernazza P: Swiss Medical Forum 2021; 21(0304) doi: 10.4414/smf.2021.08707

2020

• Investigating the Quality of Life of Patients with Acute Leukemia, with a Focus on Age and Patient-Reported Experience. Pemberton-Whiteley, Bier, Geissler, Wintrich, Verhoeven, Christensen et al, in: Blood (2020) 136 (Supplement 1), doi: 10.1182/blood-2020-141293
• Cross-Border Access to Clinical Trials in the EU: Exploratory Study on Needs and Reality. Lalova, Padeanu, Negrouk, Lacombe, Geissler, Klingmann, Huys, in: Frontiers in Medicine (2020), doi: 10.3389/fmed.2020.585722
• Treatment-free remission in chronic myeloid leukemia: the patient perspective and areas of unmet needs. Sharf, Marin, Bradley, Pemberton-Whiteley, Bombaci, Christensen, Gouimi, Deekes, Daban, Geissler, in: Leukemia (2020), doi: 10.1038/s41375-020-0867-0
• Core outcome set measurement for future clinical trials in acute myeloid leukemia: the HARMONY study protocol using a multi-stakeholder consensus-based Delphi process and a final consensus meeting. Lang, Harrison, Williamson, Ossekoppele, Geissler, Berezczky et al, in: Trials (2020), doi: 10.1186/s13063-020-04384-1
• Including the patient voice in the development and implementation of patient-reported outcomes in cancer clinical trials. Addario B, Geissler J, Horn MK, Krebs LU, Maskens D, Oliver K, Plate A, Schwartz E, Willmarth N.
  in: Health Expect. 2020 Feb;23(1):41-51. doi: 10.1111/hex.12997. PMID: 31722131
• Integrating public health programs and research after the malaria vaccine implementation program (MVIP): Recommendations for next steps, van der Graaf R, Macklin R, Rid A, Bhan A, Gefenas E, Greco D, Haerry D, Hurst S, London A J, Saracci R, Sprumont D, van Delden JM, Vaccine October 2020, doi: 10.1016/j.vaccine.2020.08.077
• HIV Post-Expositionsprophylaxe (PEP) und Prä-Expositionsprophylaxe (PREP): Schoepf I, Haerry D, Tarr Ph: , Pharma Kritik 2020, accepted
• WHO’s malaria vaccine study represents a “serious breach of international ethical standards: van der Graaf R, Macklin R, Rid A, Bhan A, Gefenas E, Greco D, Haerry D, Hurst S, London A J, Saracci R, Sprumont D, van Delden JM, BMJ 2020;368:m734, doi: 10.1136/bmj.m734

2019

• Including the patient voice in the development and implementation of patient-reported outcomes in cancer clinical trials. Addario, Geissler, Horn, Krebs, Maskens, Oliver, Plate, Schwartz, Willmarth, in: Health Expectations (2019), doi: 10.1111/hex.12997
• CML Patients’ Views on Psychological Support throughout the Treatment-Free Remission Journey. Sharf, Hochhaus, Geissler, Marin, Pemberton-Whiteley, Bombaci, Christensen, Gouimi, Daban, Deekes, Bradley, in:  Blood (2019) 134 (Supplement_1): 2934, doi: 10.1182/blood-2019-123942
• Identifying Differences in the Quality of Life of Patients with Acute Leukemia: A Global Survey. Pemberton-Whiteley, Oliva, Geissler et al, in: Blood (2019) 134 (Supplement_1): 4785, doi: 10.1182/blood-2019-128818
• Randomized, Open-Label, Multicenter, Phase 2 Study of Asciminib (ABL001) As an Add-on to Imatinib Versus Continued Imatinib Versus Switch to Nilotinib in Patients with Chronic Myeloid Leukemia in Chronic Phase Who Have Not Achieved a Deep Molecular Response with Frontline Imatinib. Saglio, Hughes, Geissler, Kapoor, Longin, Mukherjee, Cortes, in: Blood (2019) 134 (Supplement_1): 5910, doi: 10.1182/blood-2019-124702

2018

• Beyond maximum grade: modernising the assessment and reporting of adverse events in haematological malignancies. Thanarajasingam, Minasian, Baron, Cavalli, De Claro, Dueck, El-Galaly, Everest, Geissler et al, in: Lancet Haematology (2018), doi: 10.1016/S2352-3026(18)30051-6
• What do stakeholders expect from patient engagement: Are these expectations being met? Boudes, Robinson, Bertelsen, Brooke, Hoos, Boutin, Geissler, Sargeant, in: Health Expectations (2018), doi: 10.1111/hex.12797
• Role of Patient Organisations. Bedlington, Geissler, Houyez, Lightbourne, Maskens, Strammiello, in: Patient Involvement in Health Technology Assessment. Facey, Ploug Hansen, Single (Ed.) (2017), doi: 10.1007/978-981-10-4068-9
• Asciminib (ABL001) in Combination with Imatinib in Patients with Chronic Myeloid Leukemia in Chronic Phase Who Have Not Achieved a Deep Molecular Response with Long-Term Frontline Imatinib: A Randomized, Open-Label, Multicenter, Phase 2 Study. Cortes, Hughes, Geissler, Hois et al, in: Clinical Lymphoma, Myeloma and Leukemia (2018), doi: 10.1016/j.clml.2018.07.093
• EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&D; Warner K, See W, Haerry D, Klingmann I, Hunter A, and May M. Front. Med. 5:270. doi: 10.3389/fmed.2018.00270
• EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Ethical Review of Clinical Trials: Klingmann I, Heckenberg A, Warner K, Haerry D, Hunter A, May M and See W (2018). Front. Med. 5:251. doi: 10.3389/fmed.2018.00251
• EUPATI Guidance for Patient Involvement in Medicines Research and Development: Health Technology Assessment: Hunter A, Facey K, Thomas V, Haerry D, Warner K, Klingmann I, May M and See W (2018). Front. Med. 5:231. doi: 10.3389/fmed.2018.00231
• EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Regulatory Processes: Haerry D, Landgraf C, Warner K, Hunter A, Klingmann I, May M and See W (2018). Front. Med. 5:230. doi: 10.3389/fmed.2018.00230

2017

• Improving Patient Involvement in Medicines Research and Development: A Practical Roadmap. Geissler, Ryll, Leto, Uhlenhopp, Therapeutic Innovation & Regulatory Science (2017), doi: 10.1177/2168479017706405
• Factors influencing adherence in CML and ways to improvement: Results of a patient-driven survey of 2546 patients in 63 countries. Geissler, Sharf, Bombaci, Daban, de Jong, Gavin, Pelouchova, Dziwinksi, Hasford, Hoffmann, Journal of Cancer Research and Clinical Oncology (2017), DOI: 10.1007/s00432-017-2372-z
• Culture and Process Change as a Priority for Patient Engagement in Medicines Development. Boutin, Dewulf, Hoos, Geissler, Todaro, Schneider et al, in: Ther Innov Regul Sci (2017), doi: 10.1177/2168479016659104.
• Living with the burden of relapse in multiple myeloma from the patient and physician perspective.
  Hulin C, Hansen T, Heron L, Pughe R, Streetly M, Plate A, Perkins S, Morgan K, Tinel A, Rodrigues F, Ramasamy K. Leuk Res. 2017 Aug;59:75-84. doi: 10.1016/j.leukres.2017.05.019. PMID: 28582636
• Patient reporting in the EU: Analysis of EudraVigilance data: David U. Haerry (co-author), Drug Safety Journal, 2017
• HIV-Präexpositionsprophylaxe (PrEP): David U. Haerry (co-author), Schweiz Med Forum 2017;17(26–27):579–582

2016

• Chronic myeloid leukemia patients call for quality and consistency when generics are introduced to treat their cancer, J Geissler, G Sharf, J Cugurovic, R Padua, Š Narbutas, M Remic, V Venkatesh; Leukemia (2016); doi: 10.1038/leu.2016.220
• The European Hematology Association Roadmap for European Hematology Research, a consensus document. Engert, Balduini, Brand, Coiffier et al, in: Hematologica (2016), doi: 10.3324/haematol.2015.136739
• The European Cancer Patient’s Bill of Rights, update and implementation 2016, Højgaard, Löwenberg, Selby et al,  in: ESMO Open (2016), doi: 10.1136/esmoopen-2016-000127
• CIOMS International Ethical Guidelines for Health-related Research involving Humans, David U. Haerry (Member working group); approved by CIOMS Executive Committee Nov 29, 2016
• Reasons for not starting antiretroviral therapy in HIV-1 infected individuals: A changing landscape, David U. Haerry (co-author), Infection (2016) 44: 521. doi:10.1007/s15010-016-0887-x

2015

• Biobanking from the patient perspective, D Mitchell, J. Geissler, A Parry-Jones, H Keulen, D Schmitt, R Vavassori, B Matharoo-Ball., Research Involvolvement and Engagement (2015) 1: 4. doi: 10.1186/s40900-015-0001-z
• Mobile Health Global Interview with Jan Geissler, 29 Sept 2015
• EUPATI: Collaborating between patients, academia and industry to champion the informed patient in medicines research and development, Daphnee Pushparajah, Jan Geissler, Niels Westergaard, in: Journal of Medicines Development Science (July 2015), doi: 10.18063/JMDS.2015.01.011
• Partnering With Patients in the Development and Lifecycle of Medicines: A Call for Action, Anton Hoos, James Anderson, Marc Boutin, Lode Dewulf, Jan Geissler, Graeme Johnston, Angelika Joos, Marilyn Metcalf, in: Therapeutic Innovation & Regulatory Science (April 2015), DOI: 10.1177/2168479015580384
• Training on trials: Patients taught the language of drug development, Shraddha Chakradhar, Nature Medicine (5 March 2015), doi:10.1038/nm0315-209, with Interview of Jan Geissler
• Patienten brauchen Sicherheit, aber auch Fortschritt – Die neue EU-Verordnung zu klinischen Arzneimittelprüfungen, Jan Geissler, FORUM 2015, 30:29–32, DOI 10.1007/s12312-015-1266-8, Springer, February 2015
• Informed Consent, ESMO (European Society for Medical Oncology). Background, Literature and Recommendations for Writing an Informed Consent Form Thomas Cerny, Jan Geissler, Marie-Christine Hollerith
• Syphilis: aktualisierte Empfehlungen zu Diagnostik und Behandlung: David U. Haerry (co-author), Schweiz Med Forum 2015;15(19):459-465

2014

• ePatients: Changing healthcare with technology, Interview on Mobile Health Global, 27 November 2014
• Patients as partners in medicines development – the EUPATI project, Interview of an Geissler in Pharmaforum blog, 14 Oct 2014
• Integrating cancer patients’ perspectives into treatment decisions and treatment evaluation using patient-reported outcomes–a concept paper. Huebner, Rosé, Geissler, Gleiter, Muenstedt, Micke, Buentzel, Bottomley, Hofheinz, in: Eur J Cancer Care (2014), doi: 10.1111/ecc.12095
• Molekular zielgerichtete Therapie der chronischen myeloischen Leukämie (CML), Prof. Dr. Tim H. Brümmendorf und Prof. Dr. Steffen Koschmieder (Hrsg.), Jan Geissler (Co-Autor), UNI-MED, 1. Auflage 2014, 140 Seiten, Hardcover, ISBN 978-3-8374-2269-6
• A Catalyst for Change: The European Cancer Patient’s Bill of Rights. Lawler, Le Chevalier, Murphy, Banks, …, Geissler et al, in: Oncologist (2014), doi: 10.1634/theoncologist.2013-0452
• Der Patient als Partner, Jan Geissler, Jahrbuch Healthcare Marketing 2014 zu “Patient, Verbraucher, Kunden – bestimmen die Nutzer den Gesundheitsmarkt?”
• Psychosoziale Aspekte bei der Behandlung der HIV-Infektion: David U Haerry (co-author), Therapeutische Umschau (2014), 71, pp. 509-513, doi: 10.1024/0040-5930/a000545
• Postexpositionelle Prophylaxe (PEP) von HIV ausserhalb des Medizinalbereichs – Update der Empfehlungen des BAG, David U. Haerry (co-author), Schweiz Med Forum 2014; 14(8)

2013

• Survey on the worldwide CML Advocates Network regarding complementary and alternative medicine, Journal of Cancer Research and Clinical Oncology, T Elsner, J Geissler, J Huebner, J Cancer Res Clin Oncol, March 2013, doi: 10.1007/s00432-013-1414-4
• Factors Predicting Intentional Non-Adherence In Chronic Myeloid Leukemia: A Multivariate Analysis On 2546 Patients By The CML Advocates Network. Geissler, Efficace, Bombaci, de Jong, Gavin, Dziwiński, Daban, Pelouchová, Cottone, Guilhot, Sharf, in: Blood (2013), doi: 10.1182/blood.V122.21.4023.4023
• Quality of Life in hematology: European Hematology Association theme of the year … and years to come. Chomienne, Guenova, Hagenbeek, Lacombe, McCann, Salek, Geissler, van der Beek, in: Haematologica (2013), doi: 10.3324/haematol.2012.080796.

2012

• Adherence in Chronic Myeloid Leukemia: Results of a Patient-driven Pilot Survey, Jan Geissler, Giora Sharf. in: Journal For Patient Compliance, Vol 2 Issue 4 (2012)
• Psycho-oncology and Advocacy in Cancer Care: An International Perspective, Luzia Travado, Jan Geissler, Kim Thiboldeaux, Jeff Dunn, Ranjit Kaur, and Anne Merriman. in: Clinical Psycho-Oncology: An International Perspective, Luigi Grassi, Michelle Riba, Wiley (2012), DOI: 10.1002/9781119941101

2011

• Delivering affordable cancer care in high-income countries. Sullivan, Pepperkorn, Sikora, … Geissler et al, in: The Lancet Oncology Commission (2011), doi: 10.1016/S1470-2045(11)70141-3
• Meet e-patient Jan Geissler – Whydot Blog Interview, 1 August 2011
• Survivorship: more than just being (a) patient (European Oncology Nursing Society Newsletter, Summer 2011 edition, pp. 25-27)

2010

• Information to Patients Debate 2010 – as if the Internet was still a walled garden, Rare Disease Blogs April 2010, J. Geissler
• The Burden of Rare Cancers in Europe – Gatta G et al, J. Geissler (co-author) in: Advances in Experimental Medicine and Biology (2010),  doi: 10.1007/978-90-481-9485-8_17
• Informierte Einwilligung in klinischen Studien (Informed Consent in Clinical Trials (German), J. Geissler, German Cancer Society’s FORUM magazine 3/2010
• We, the patients featuring J. Geissler– CancerWorld Magazine, January 2010 (PDF)

2009

• Returned to Risk, Deportation of HIV-positive Migrants David U. Haerry (co-author), Human Rights Watch, 2009

2008

• Assessing and supporting patients’ readiness to start cART. Facilitate decision making and starting cART for patients who qualify according to international guidelines. David U. Haerry (co-author), NEAT 2008 (EACS Treatment Guidelines since 2011)

2005

• Proceedings of the International Conference Monte Verità Tailoring Health Messages
  Marie-Christine Eckle, Ilona Funke, Karl-Walter Jauch, Thomas Knieper, Barbara Mayer (2005):
  Key Role of Family and Friends in Communicating Cancer Information

2004

• Compulsory HIV testing from a public health and human rights perspective A summary of key arguments to support a wider discussion. Published: PWHA-Net, David U. Haerry (co-author), April 2004

1998

• Travel & residency restrictions for people with HIV/AIDS Ongoing global survey, Online: http://www.hivtravel.org/ David U. Haerry (co-author), since 1998